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Looking for people who have or have had a tumor in the body of the pancreas.?

Do you have a case worker assigned to your case to help you? What was your diagnosis and treatment? What tests did they do to diagnosis you? First diagnosis was suggested to be islet tumor of the endrocine and they wanted to do a distal pancreatecomy and spleenectomy right away. Second diagnosis isn't in yet, but further blood tests, including the CA-19-9, and a Octreo scan is being done (yesterday and today), and a 24 hour urine test. My tumor apparently is cyst-like in an oval shape with a new moon shape that is denser and has blood fluid in it. I don't have any symptoms as yet and the size is 2 cm and round. Received a call from the medical oncologist doctor yesterday and he met with the Tumor Board and their recommendation is the distal pancreatocomy. I was diagnosised as type 2 diabetic in May 2006 and have been informed that this surgery will result in my needing to use insulin. Did this happen to you, and how are you doing? Thanks.

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  1. I don't have pancreatic cancer myself, but I did some research to try to find related support groups. The Pancreatic Cancer Alliance http://www.pancreaticalliance.org/panca/support.html "Living with a serious disease such as pancreatic cancer is not easy. Some people find they need help coping with the emotional and practical aspects of their disease. Support groups can help. In these groups, patients or their family members get together to share what they have learned about coping with their disease and the effects of treatment. Patients may want to talk with a member of their health care team about finding a support group." The Pancreatic Cancer Support & Information eCommunity http://listserv.acor.org/archives/pancreas-onc.html "ACOR.org, the Association of Online Cancer Resources, provides a number of support group email lists. The pancreatic cancer list — moderated by Mary Zapor, long-term survivor Don Sterner, and Kathryn Abernathy — is a deep resource of information on the challenges of the disease. A true community, caregivers on the list remain to help those newly diagnosed long after their battles have ended." How can people find Cancer support groups? http://www.nci.nih.gov/cancertopics/factsheet/support/support-groups Many organizations offer support groups for people diagnosed with cancer and their family members or friends. The NCI fact sheet National Organizations That Offer Services to People With Cancer and Their Families lists many cancer-concerned organizations that can provide information about support groups. This fact sheet is available at http://www.cancer.gov/cancertopics/factsheet/support/organizations on the Internet, or can be ordered from the Cancer Information Service at 1–800–4–CANCER (1–800–422–6237). Some of these organizations provide information on their Web sites about contacting support groups. Doctors, nurses, or hospital social workers who work with cancer patients may also have information about support groups, such as their location, size, type, and how often they meet. Most hospitals have social services departments that provide information about cancer support programs. Additionally, many newspapers carry a special health supplement containing information about where to find support groups. I sincerely hope this helps, Micah
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